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Monday, 3 July 2017

Dear Autism… #autism #autismdiet

Dear Autism,

Today you are winning… but I won’t give up. I know my son is in there. I truly hate yeast and Clostridia. The tears today are more than I can handle and I put it up to God. It just seems so unfair. Autism doesn’t care if you did all you could right in your life… no one should have to watch their children go through this. If you write to me today to tell me Autism is beautiful (I assure you today is not the day to talk to me then). You can come and hear my son so upset and then tell me it’s so beautiful.

I pray the meds that are supposed to kill the bad bacteria work.

I will wipe my tears and keep going…

The bad guys (in this case bacteria) won’t win.
White hats always win in the end! I keep telling myself that.

Love,
A determined mother #autism #hope #nevergiveup #frontlines

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Friday, 23 June 2017

Shake Up That Etch A Sketch #autism #autismdiet

So there are days like today that I just wish for normal. Whatever normal is. Autism can be so challenging and I have to keep reminding myself to shake up my etch a sketch and re draw a new picture of what perfect is. Some of us in the community won’t ever get the graduations, school dances, soccer games, driver’s license, first dates and so on… When I was a little girl I used to dream of getting to be the mom that cut up orange slices for my kids sporting practices, I looked forward to complaining about car pool, and having the crazy waffle weekend breakfast’s as I yelled at my kids to pick up their shoes they left laying on the ground… That is not my reality these days and I have to continue to be excited on all of our victories and accomplishments… Like his first words again after losing all of his speech at 15 months of age, the first time he looked at me again, his laughter after holding him for years and years in my arms as he screamed. I have so many dreams for Jaxson still. I will never stop dreaming and reaching for all the stars for him. I have to redefine what normal is for me today. Normal changes daily too… Today’s normal won’t be tomorrow’s. Learning to appreciate and be grateful for every wonderful moment we get when Jax is doing well and feeling well….. So I am shaking up my etch a sketch and re drawing what today’s normal and perfect is…. #autism #hope #nevergiveup

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Monday, 19 June 2017

Never Give Up #autism #autismdiet

So as many of you might know we have been going thru some challenges with Jax. Multiple doctors visits, EEG, lab work, just sent more labs off today and am praying for an answer. My heart has been hurting greatly and I just keep praying and keeping my mind occupied as otherwise I would be in constant tears. Today Jaxson’s iPad broke and I was calling to see if our AppleCare was still good and the gentlemen on the phone asked for my email and such and answered my questions. Unfortunately, we are just out of warranty however right before we hung up he said to me, “I noticed your email has the word Autism in it. Do you work with families or have a child of your own with Autism?” I replied that I work for a non profit and yes I had a son.He then said, “I want you to know it’s going to be okay with your son. I was diagnosed with Autism and didn’t speak til I was 9 or 10 and my parents never gave up and I am now working at Apple with a great life. Times can be hard for both of you but he knows you love him.” I asked him what did he think helped him start talking and doing better. He said his parents love and he believed some nutritional supplements but didn’t remember which ones. He said his brain started thinking more clearly and he started learning to deal with his anxiety and fear.
I just started crying on the phone and said you have no idea how great that is for me to hear.
What an amazing story and just the right time… #nevergiveup #hope#autism

I am sure his parents did a lot more than he knows however, I love that their love and nutritional supplements is what he remembered as what helped the most… he told me to share his story. Sadly, I can’t remember his name but he was just like one of our kids…

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Thursday, 18 May 2017

AHA’s Visit To Autism Treatment Center of America #autism #autismdiet

On my way home from Massachusetts. AHA’s Founder and I visited the Autism Treatment Center of America. It was an amazing trip to see our friends there. We were ecstatic to have completed the commitment Autism Hope Alliance had made to fund 100 families to attend a Son-Rise program. These are some pictures of the campus. We feel so grateful for their friendship and to be able to help families together. For more info about their programs visit http://ift.tt/1kvXDB8 #autism #hope#nonprofitshelpingothernonprofits

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Thursday, 11 May 2017

Care for the Caregiver / Self Care #autism #autismdiet

“Please place the oxygen mask on yourself first before helping small children or others who may need assistance”. These are the words we hear whenever we fly. The reason is obvious; we can’t help others until we first help ourselves. It seems simple, doesn’t it? But in life, it is rarely so easy to discern. When we are tasked with the job of giving care to a loved one, we often overlook the needs of ourselves. This, however, can be counterproductive since the care given is only as good as the energy levels, emotional stability and attitude of the caregiver.

Let’s take a step back and look specifically at the caregivers of a son, daughter or loved one with Autism. Though this will be our focus, the principles apply to anyone providing needed care to others. The Center for Disease Control (CDC) reports that 1 in 68 children have been diagnosed with Autism. Some believe the number is even more shocking, that is 1 in 45. Regardless, it is an epidemic today and 1 in 20 households are affected. If yours is not, you likely know someone who is. This means there are millions of caregivers who regularly assist small children, adolescents, and adults who live with this diagnosis. The disorder is considered to be part of a spectrum, so there is a wide array of symptoms from the not so obvious to the very serious and everything in between.

Though the symptoms vary, there is one thing we can be certain of – much care and oversight is required. As a result, one of the parents frequently becomes a full-time caregiver and this often lasts a lifetime. The demands of providing full-time care contribute to an enormous amount of additional stress on marriages, family, and outside relationships. According to Psychology today “The diagnosis causes stress in many different ways that are not always obvious, and the stress can be significant. Some suffer from acute and chronic stress that can often take a toll similar to Post Traumatic Stress Syndrome. In addition, the diagnosis often changes entire family dynamics, not just the marriage. It also can change relationships with friends, extended family, and coworkers. It can take months, sometimes years to come to acceptance and also to adapt to the new level of stress that often accompanies the diagnosis”. Add to this the potential increase of anxiety, health problems, frustration, burnout and lack of sleep often associated with caring for the needs of others and you can see why self-care is essential. So what can be done?

Fuel Up

The importance of good nutrition is essential to maintain the energy level needed to care for your child. This is often underestimated and overlooked since the intake of something sweet or bad for you feels like a way to disengage and do something for yourself. In other words, “I deserve this.” This can take a huge toll on energy levels and attitude.

Besides the need to manage the foods we eat by avoiding deep fried foods, fast food, sweets, and desserts while consuming a balanced diet of vegetables, fruits, and lean protein, the caregiver should add some essential supplements. The basics include the daily intake of a multi-vitamin (preferably one from whole food sources), probiotics, flax or fish oil and a digestive enzyme with each meal. This can help recharge and maintain your metabolic batteries. When you maintain a proper diet, something sweet from time to time does little damage and really feels like a reward, after all – you deserve it.

Rest Up

The proper amount of rest is necessary to be a good caregiver. The National Sleep Foundation recommends 7 to 9 hours a day. They also state that some can get by with just 6 hours of sleep. You likely know how much you need to feel well rested. The lack of proper amounts of sleep can alter the attitude of the caregiver and create an atmosphere of frustration, anxiety, and lack of patience. Often getting the rest that is needed can be challenging if other demands are placed on them. It is essential though to find the time! The solution often rests in delegating other responsibilities to family members. Another option is to sleep during down times, such as when the child takes a nap. Don’t underestimate the value of a “power nap.”

Help Wanted

It is essential for most caregivers to have assistance that will allow them to take some “me time”. Some have the means to hire a qualified helper but for many, this simply is not an option. This means that you must learn to ask for help from family members, friends, and potential volunteers. Keep in mind that although it can be hard to ask for such assistance, it is likely the only way you will get it.

The Power of Knowledge

They say knowledge is power and how true this is when it comes to caring for the needs of a child with Autism. There are some wonderful resources that cannot only help with some of the behavioral challenges associated with Autism but also with maintaining balance, communicating with your child and maintaining your marriage. My favorite resources can be found at – http://ift.tt/2pCRWqq

There’s More…

Through proper nutrition, adequate rest, getting help when needed and gaining knowledge can help, there is much more one can do. Psychological First Aid – 2016, adds: using stress management tools, practicing brief relaxation techniques, regular exercise, staying aware of one’s limitations, increasing activities that are positive along with limiting the intake of caffeine and tobacco can also reduce some of the stress and anxiety associated with providing long-term care.

Finally – Avoid the Guilt Trip 

Guilt can be a powerful reason for many not to take care of themselves when they are consumed by the challenge of taking care of someone else. Sherrie Bourg Carter Psy.D. at Psychology Today states: “Some people feel guilty about taking time for themselves. They see themselves as the one who should be taking care of everyone else, and their needs often fall by the wayside. However, taking care of yourself is something that you should never feel guilty about. It not only models healthy behavior for the ones you love, it also keeps you happy, healthy, and strong so that you can continue doing what fulfills you; and if that’s taking care of others, then you’re in an even better position to do that”.

So put the oxygen mask on and take care of yourself first! You will be a better caregiver as a result and find even more joy in doing so.

The post Care for the Caregiver / Self Care appeared first on Autism Hope Alliance.



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Sunday, 23 April 2017

Tony Robbins, Jesse Itzler & Harvey Diamond Help Raise Awareness for Autism! #autism #autismdiet

The Autism Hope Alliance is happy to have the support of three very active and generous “influencers”. Tony Robbins, Jesse Itzler and Harvey Diamond have lent their name’s to our cause and we couldn’t be more grateful.

Tony Robbins is the author of six internationally bestselling books, including most recently New York Times #1 bestsellers UNSHAKEABLE! He is also a founder or partner in more than thirty companies in various industries, ranging from technology and sports to events and hospitality, including the #1 rated resort & spa in the Fijian islands. These companies have combined annual sales of $5 billion.

Recently Tony shared a Facebook post and tweeted about The Autism Hope Alliance and the Gift of Hope effort –

 

 

 

 

 

 

 

Jesse Itzler cofounded Marquis Jet, the world’s largest prepaid private jet card company in 2001, which he and his partner sold to Berkshire Hathaway. He then helped pioneer the coconut water craze with Zico coconut water, which he and his partners sold to The Coca-Cola Company in 2013. When he is not running ultra marathons or being a dad to his four kids, Jesse can be found at the NBA’s Atlanta Hawks games, where he is an owner of the team. He is married to Spanx founder Sara Blakely and the couple and their 4 children. Recently Jesse posted a challenge on Facebook and YouTube to his fellow “Fitlanthopists” to raise money and awareness for families of children with Autism-

Recently Jesse posted a challenge on Facebook and YouTube to his fellow “Fitlanthopists” to raise money and awareness for families of children with Autism-

 

 

 

 

 

 

 

Harvey Diamond is a Health & Wellness Advocate and New York Times #1 Bestselling Author who has been studying and teaching the principles of healthful living for over 45 years. He is credited as a pioneer in helping shift people toward healthier eating. He has helped millions of people worldwide to not only dramatically improve their health but also to overcome serious, catastrophic disease. His Fit for Life books have sold nearly 14 million copies in 33 languages and are read in over 80 countries. Fit for Life held the #1 position on the prestigious New York Times Bestseller list for an unprecedented 40 consecutive weeks. It was the fastest selling book of its kind in history.

Harvey was recently interviewed for the upcoming “Autism Hope Summit” where he covers the topic about Care for the Caregiver like no one else can. This will be heard by tens of thousands of parents who give full-time care to children diagnosed with Autism. It can be heard during the week of May 15th.

Autism now affects 1 in 20 households and raising awareness is a monumental task. We are exceedingly happy to have such influencers join us in sharing our message of hope. Thank you Jesse, Harvey, and Tony for the care and generosity you show!

You Can Help!

  1. Spread the word. Tell friends, loved ones and post on social media the opportunity to help others.
  2. Purchase or subscribe to the Gift of Hope at AHAGiftOfHope.org. When you do a box is sent to a family in need.
  3. Donate to the Gift of Hope here. Every $75.00 raised provides a month supply of essential nutritional products to a family in need.

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