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Friday 23 June 2017

Shake Up That Etch A Sketch #autism #autismdiet

So there are days like today that I just wish for normal. Whatever normal is. Autism can be so challenging and I have to keep reminding myself to shake up my etch a sketch and re draw a new picture of what perfect is. Some of us in the community won’t ever get the graduations, school dances, soccer games, driver’s license, first dates and so on… When I was a little girl I used to dream of getting to be the mom that cut up orange slices for my kids sporting practices, I looked forward to complaining about car pool, and having the crazy waffle weekend breakfast’s as I yelled at my kids to pick up their shoes they left laying on the ground… That is not my reality these days and I have to continue to be excited on all of our victories and accomplishments… Like his first words again after losing all of his speech at 15 months of age, the first time he looked at me again, his laughter after holding him for years and years in my arms as he screamed. I have so many dreams for Jaxson still. I will never stop dreaming and reaching for all the stars for him. I have to redefine what normal is for me today. Normal changes daily too… Today’s normal won’t be tomorrow’s. Learning to appreciate and be grateful for every wonderful moment we get when Jax is doing well and feeling well….. So I am shaking up my etch a sketch and re drawing what today’s normal and perfect is…. #autism #hope #nevergiveup

The post Shake Up That Etch A Sketch appeared first on Autism Hope Alliance.



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Monday 19 June 2017

Never Give Up #autism #autismdiet

So as many of you might know we have been going thru some challenges with Jax. Multiple doctors visits, EEG, lab work, just sent more labs off today and am praying for an answer. My heart has been hurting greatly and I just keep praying and keeping my mind occupied as otherwise I would be in constant tears. Today Jaxson’s iPad broke and I was calling to see if our AppleCare was still good and the gentlemen on the phone asked for my email and such and answered my questions. Unfortunately, we are just out of warranty however right before we hung up he said to me, “I noticed your email has the word Autism in it. Do you work with families or have a child of your own with Autism?” I replied that I work for a non profit and yes I had a son.He then said, “I want you to know it’s going to be okay with your son. I was diagnosed with Autism and didn’t speak til I was 9 or 10 and my parents never gave up and I am now working at Apple with a great life. Times can be hard for both of you but he knows you love him.” I asked him what did he think helped him start talking and doing better. He said his parents love and he believed some nutritional supplements but didn’t remember which ones. He said his brain started thinking more clearly and he started learning to deal with his anxiety and fear.
I just started crying on the phone and said you have no idea how great that is for me to hear.
What an amazing story and just the right time… #nevergiveup #hope#autism

I am sure his parents did a lot more than he knows however, I love that their love and nutritional supplements is what he remembered as what helped the most… he told me to share his story. Sadly, I can’t remember his name but he was just like one of our kids…

The post Never Give Up appeared first on Autism Hope Alliance.



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